Sunday, January 30, 2011

It's that time of year again! CHD Awareness Week Feb 7-14, 2011



Somewhere...someplace... today...
A family is waiting to hear...
Is something wrong with their baby?
The answers aren't quite clear...
This family has entered an unwanted world...
And they just don't know what to expect...
Somewhere...someplace... today
They first heard the words: heart defect.
And how they hoped this was not true...
And thought... this cannot be...
I too... know just how this feels...
For one day...this was me.

Somewhere...someplace...today...
A man and a woman embrace...
Their baby is in surgery...
They long to see her face...
They haven't got to hold her yet...
Without...a cord or line...
They pace the room awaiting news...
And hope she'll be just fine.
Prayers fill this busy waiting room...
And mom and dad are scared...
Somewhere...someplace..today...
The tiniest hearts are repaired.

Somewhere...someplace...today...
A child's growing fast...
Smiling,laughing,thriving...
His mom thinks...can this last?
It's almost easy...to forget...
That anything is wrong...
Somewhere...someplace..today...
Her child seems so strong.

Somewhere...someplace... today...
A little boy fights...just to live
A father holds his tiny hand...
His love...all he can give...
The doctor's are all baffled...
They fear that he might die...
Somewhere...someplace...today...
A family says goodbye...

Somewhere...someplace...each year..
More than 40,000 families will see...
What it means...when something's wrong...
They'll face a CHD.
Today...for just a moment...
Stop...remember...reflect...
Make time to tell someone you know...
"I've been changed by a heart defect".

Author - Stephanie Husted



My life has forever been changed by a heart defect. Something that I knew nothing about until we received Cali's diagnosis at 20 weeks along in pregnancy. CHDs effect 1 in 100 babies each year, that works out to be roughly 40,000 annually! CHDs are the # 1 birth defect and nearly twice as many children die from CHDs n the US each year as from all forms of childhood cancers combined! And yet it seems like no one knows about them! So that's what this upcoming awareness week is about- to help people learn and hopefully by learning about it we can also begin to support research to help our little heart babies!


Here's a list that I've complied of little things we can do to help raise awareness and in doing so remember our dear little Cali!


Change your Facebook profile picture to one of the CHD Awareness Stock Photos
Use your Facebook/ Twitter Status to talk about CHD Awareness
Become friends with CHD Awareness 2011 (Official) on Facebook
Wear red for CHD week and tell others why you're wearing it

If you have a blog, FB or Twitter talk about CHDs (see this fact sheet) or if you'd like to link to our blog or a link to Cali's story talk to me :) and I can make that happen!
Talk to friends, neighbours about your experience with CHD
Give blood (Cali received many blood transfusions)
Volunteer at a local Children's Hospital
Donate financially to one of the many worthy organizations:http://intermountainhealinghearts.org/donations/
Buy a CHD Awareness Week Pin for $5 at http://tchin.org/pins/ & wear it!
If you participated in a Heart Walk, you could wear your Tshirt!



We love all of you so much and truly appreciate all the love and support that we have received! This is the first "cause" that I have truly felt passionate about. I have learned (and continue to learn) a lot from losing Cali and one of those great things is the absolute goodness and strength of people. I now appreciate other's causes so much more because I can understand how important it is to them and I truly hope that I give the kind of support to you in your causes that you've given to us.


If you would again either comment or email me to let me know what you've done to be a part of this awareness that'd be awesome. I kept a log last year and I'll add to it again this year. We love you all! <3

1 comment:

Stan and Jenn said...

I love your family picture at the top. So cute!