Friday, September 11, 2009


We had a slight change in plans right after I last posted. Dr. Burch was informed of Cali's low stats and wanted to open her up to see if there was something compressing her heart. After about an hour or so he just came to inform us that he was able to lift the sternum up from off the conduit. This has allowed her stats to improve and Dr. Burch is pleased with her current levels. He has also placed something that will keep the sternum off her heart, and a piece that keeps the chest open a little bit more to keep any pressure off. He also said the flow from the veins he fixed yesterday looked good as well as where he sewed in the conduit. So we are hopeful that this was indeed what was causing her low levels and now she can continue to heal.


Lisa Webb said...

Hi guys, so i had no idea there were any problems with your new baby. I'm glad I finally checked your blog. I'm sorry to hear all this and will keep Cali in my thoughts and prayers. Take care!

Amanda and Steve said...

:-) So glad to hear that.

Aimee Hardy said...

I'm glad Dr. Burch was able to find a solution to get her sats back up. I hope you all are able to get some sleep tonight.

We will all be thinking about you at the IHH Heart Walk tomorrow.

dmg said...

I found your website from the healing hearts website and I just want you to know that you and your little Cali our in our prayers. We know how hard this road is. We pray that Cali will have the strength and determination to get through all of the challenges and obstacles she is facing.

My daughter Gracie has HLHS and has had a rough road to travel. With her first surgery she was in the PICU for three months and the second surgery we were in the PICU for two months.

After her first surgery she had some similar problems with her sternum placing too much pressure on her heart causing her not to do well. This didn't happen until after they tried to close her chest for the second time, several days later. The solution was to suspend Grace from her sternum---quite the sight.

I guess to make a long story short, we can understand where you are and what you are going through and if you ever need to talk we are here.

If you would like Grace and I will be at the hospital on Monday for a cardiology appoint and would love to meet you. But we also understand the desire to be by your baby's side and not leave.

You are in our thoughts and prayers,

Deanna and Gracie Gourley

Bethany said...

i'm so sorry there have a been a few bumps in the road. this is never easy. it sounds like you have some very good doctors, though, and that is good. cali is a fighter! just curious--did she have the bt shunt or the sano? i'm continuing to pray for yall!

James and Amy said...

thank you for the updates. We have been keeping up every day. I'm glad to hear her stats were able to go up with this last procedure. Our continual prayers are with you guys.

loves from Maryland

The Farrs said...

Wow, it is amazing what doctors can do! Such good news!