So we had our fetal echo last week. Due to the baby's size (being that she was 36 weeks along) it was difficult to get a clear view of her heart, so in essence we know about what we knew before, from our 20 week echo. So there's no news there.
As for the tour of Primary Children's that was really great. We found out that the heart babies actually go into the Pediatric Intensive Care Unit at Primarys instead of the typical NICU. There are about 30 beds (with a 12 bed cardiac unit extension taking place)with children of all ages in PICU. We got to see a little HLHS baby with all the machines, monitors, tubes & IVs. It was difficult to see but yet so helpful to have an idea of what to expect before our baby is in there.
We also found out that because of how they schedule the surgery at Primarys and how they have the babies go to "step down" before going home we're now looking at about a 6 week hospital stay. I was shocked to hear that. In California we were told to expect about 3 weeks, now we're double that which puts us to the middle of October for a release date! But, as Thomas pointed out it just means that they're that much more careful, and by the time we do get sent home we'll really be ready.
We are now less than 4 weeks away! I can hardly believe it. When I fold her clothes, or go into her room I have such mixed feelings. I am so excited to meet her, to hold her, to study every little inch of her. But that scares me too. She has so much to go through, she needs to be so strong. I just pray that she will have Heavenly help to get her little body through all it's challenges. And I can't wait until the day comes that we get to bring her home, to put on all the cute outfits waiting for her, and to enjoy all the sweet moments we get!